My Life with Neurofibromatosis
TThis story is about me.
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My full name is Kimiko Eve Miyasato. I'm 15 years old and I have a genetic disorder called Neurofibromatosis or NF 1 for short. I'm the only one in my family that has this genetic disorder. The doctors I think found out about this when I was about a year or 2 years old... CURSE MY LACK OF MEMORY!!!!!!! This genetic disorder gives me speech problems and it's harder for me to think ( something with brain can't remember what it's called :/)
This really doesn't effect me though On my right leg I have a bunch of fibromas which will hurt if hit , poked or any other contact type thing basically. You really don't notice at first but if you look closely at my skin I have spots all over my body .. they are called Cafe au lait spots. I do get called out for this sometimes by people saying my skin is ugly or any of that other crap I get. But I have my friends who love me for who I am and even my fellow friends with neurofibromatosis I met when I'm at a camp just for us. :)
Guys , I'm just like the rest of you I love to draw , write , sing , and dance . Just because I have a genetic disorder doesn't make different from the rest of you guys. I'm still HUMAN.
So say what you want about me and this disorder... You're words won't bring me down. Wanna know why. I have my friends and family with me by my side loving me for who I am.
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