How does it affect the person?
CMT often affects coordination and balance because of loss of foot and leg muscles. This may make the person lose balance/trip over and appear clumsy in such things as walking, running, walking up or downstairs, walking on uneven ground. Good lighting at night can help you avoid stumbling and falling.
· Many people with CMT develop contractures (stiffened joints) that can lead to deformities and loss of sensation in your feet and hands. The contractures occur because as some muscles around a joint weaken, others remain strong, contracting and pulling on the joint. Over time, the bones around the joint shift into abnormal positions
· CMT sometimes affects fine motor skills like holding pens, and doing up buttons and shoelaces. This can often lead to misunderstanding and appear that the person's handwriting is messy or that they are lazy and not trying hard enough when it is because they do not have the control over the muscles in the hands and fingers.
· Other symptoms which may affect CMT patients include: tremors, fatigue and diminishing fine motor skills
. Hand and arm weaknesses are typical challenges making it difficult to take notes quickly or over a long period of time or unscrewing a bottle top, fastening buttons, turning on a tap or opening a door handle
· Slowness or inability to get ready for class such as getting out a pen and paper or lifting a book and opening it to the correct page.
· Inability to rise from a seated position on the floor or from a chair to a standing position.
· Inability to move from classroom to classroom as quickly as is normally expected, especially if stairs are Involved
· People with CMT feel weakness, lack of strength, aches pains and lethargy usually in their legs, feet, arms and fingers .This is all due to their muscles working harder to keep up with them.
It makes them feel more tired than their mates, even when they do physically less than them. They usually go to bed feeling shattered and wake up in the morning feeling much the same.
Unfortunately, tiredness is just part of CMT and other than staying in bed all day, there's not much they can do about it.
There are 2 types of tiredness –
o the first type when you just do a bit too much in the gym or at PE, or stand for too long, or walk a bit further than usual – that kind is perfectly normal muscle tiredness, and if you sit down and rest for a bit, it'll get better.
o The second is a general kind of tiredness, of the whole body, and it doesn't seem to be related to what you do. This kind doesn't get better if you rest!
The experts don't really know what is going on with CMT and this type of tiredness.
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